Anyone else doing Crazy Editing Week?

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Viewing 13 posts - 16 through 28 (of 28 total)
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  • #202752
    whaley
    @whalekeeper
      • Rank: Chosen One
      • Total Posts: 4634

      @rae Yaaaaaay – we’re on the same team. 🙃

      The exhaustion is strong with this one

      #202813
      Janellebelovedpig
      @janellebelovedpig
        • Rank: Loyal Sidekick
        • Total Posts: 156

        @whaley

        Which team? Hot Dogs, perchance? 😉

        #202844
        MineralizedWritings
        @mineralizedwritings
          • Rank: Chosen One
          • Total Posts: 3090

          @whalekeeper

          Thanks for the tag I’m rather too ill to participate in much of anything but I appreciate it anyways lol

          またね

          #202846
          Ruth
          @rae
            • Rank: Chosen One
            • Total Posts: 4304

            @mineralizedwritings

            I’m rather too ill to participate in much of anything

            You okay? I hope it’s nothing too serious 🙁

            #MakeNahimTakeABreak
            #AnduthForever (💕)

            #202853
            MineralizedWritings
            @mineralizedwritings
              • Rank: Chosen One
              • Total Posts: 3090

              @rae

              You okay? I hope it’s nothing too serious 🙁

              Not really tbh. This is the sickest I’ve been in 7 years of chronic illness and this has been one of the hardest years yet. I went to a new doctor at the recommendation of my mom and he messed up my health, I’ve been in a slight migraine state for almost 2 months since his treatment. I learned not to listen to my moms health advice last year but sometimes you just want to trust someone y’know? I guess I hit a point of weakness and gave in to her. I was on the up too, so it’s real painful. My sister is very ill as well and we recently found out my cousin has been sick for awhile too, so it’s looking to have a genetic factor. Anyways, every step I take I take two backwards but I’m learning so I’ll pretend I’m ok with it lol. Ty for the concern : )

              またね

              #202858
              Ruth
              @rae
                • Rank: Chosen One
                • Total Posts: 4304

                @mineralizedwritings

                I’ll remember to pray for you!

                Anyways, every step I take I take two backwards

                Yeah, I can relate. Last summer I had Lyme’s and Legionella really bad, and as soon as it appeared I was on the mend, everything got worse, and it turned out I had Bartonella on top of it. Thankfully, I appear to be over everything now…except the stupid chronic Lyme’s which has been flaring up again lately but it isn’t too bad.

                #MakeNahimTakeABreak
                #AnduthForever (💕)

                #202868
                MineralizedWritings
                @mineralizedwritings
                  • Rank: Chosen One
                  • Total Posts: 3090

                  @rae

                  Thanks girl, I’ll pray for you too < 3

                  Ouch that doesn’t sound like fun. Yeah I’ve heard of that, my cousin has chronic Epstein bar virus and it comes back sometimes. It’s exhausting when stuff you thought you were done with still lingers… ugh. I tested positive for Lyme last fall but the doctor didn’t feel confident treating me, and now a few doctors later they are saying I actually have something else instead and test results were false 🙄

                  Oh also idk if you’re interested but do you know of drawingwiffwaffles on youtube? I used to watch her art videos all the time but she was gone for a really long time for health issues and she made a video about it recently. She’s a Christian and I think she had one of the best perspectives I’ve heard on the topic.

                  またね

                  #202869
                  Ruth
                  @rae
                    • Rank: Chosen One
                    • Total Posts: 4304

                    @mineralizedwritings

                    Oh also idk if you’re interested but do you know of drawingwiffwaffles on youtube? I used to watch her art videos all the time but she was gone for a really long time for health issues and she made a video about it recently. She’s a Christian and I think she had one of the best perspectives I’ve heard on the topic.

                    i haven’t heard of her, but I’ll check it out, thank you!

                     I tested positive for Lyme last fall but the doctor didn’t feel confident treating me, and now a few doctors later they are saying I actually have something else instead and test results were false 🙄

                    It’s hard, since most doctors don’t usually diagnose or treat tick diseases correctly. I thankfully live near a tick disease clinic, so i got good care as soon as I was diagnosed. I’d suggest looking into seeing if there’s one in your area.

                    #MakeNahimTakeABreak
                    #AnduthForever (💕)

                    #202871
                    MineralizedWritings
                    @mineralizedwritings
                      • Rank: Chosen One
                      • Total Posts: 3090

                      @rae

                      Yeah Ikr! Unfortunately there aren’t enough doctors in my area so some kinds of healthcare are simply not available. For instance, my sister has been told she likely has ehlers danlos syndrome, a connective tissue disorder that effects all parts of the body’s function. It’s supposed to be diagnosed by a rheumatologist but because there is a lack of doctors, they are only taking rheumatology patients who have arthritis, which is more common and less serious. So instead she’s going to travel multiple states to a clinic costing about 6k dollars. And I’ll likely make the same trip next year.

                      Also, my illness has multiple layers if that makes sense. First poor genetic health, then traumatic childhood (related to autonomic nervous system dysfunction which I have), then the co-morbid conditions of poor genetic health, and then problems that come with lack of proper healthcare. It’s hard to find doctors who understand all of the health complications that come with this… or who have even heard of a situation this odd. Idk if that makes sense… lol.

                      またね

                      #202879
                      freedom
                      @freed_and_redeemed
                        • Rank: Knight in Shining Armor
                        • Total Posts: 876

                        I don’t have anything to edit atm and am deep in the trenches of drafting😂 so probably not joining

                        however, I shall cheer y’all on from the sidelines🤭🥳

                        mostly inactive🫶🏻✨

                        #202887
                        Ruth
                        @rae
                          • Rank: Chosen One
                          • Total Posts: 4304

                          @mineralizedwritings

                          It makes sense. I like dabbling in reading medical things from time to time, and it’s crazy how one little thing on top of another thing can cause a lot of serious problems.

                          Hope and pray you can get better and find the care you need 💜💜💜

                          #MakeNahimTakeABreak
                          #AnduthForever (💕)

                          #202893
                          MineralizedWritings
                          @mineralizedwritings
                            • Rank: Chosen One
                            • Total Posts: 3090

                            @rae

                            Yeah ikr! It’s honestly so insane. And American healthcare isn’t the best at sorting that kind of stuff out in my experience.

                            Thank you so much < 3

                            またね

                            #202902
                            whaley
                            @whalekeeper
                              • Rank: Chosen One
                              • Total Posts: 4634

                              @mineralizedwritings

                              My mum has complained about how doctors used to constantly tell her she was crazy and imagining things, which also led to self-image issues because they discriminated against her weight gain. I’m sorry you’re going through similar problems. Please update when you want, I want to listen too. <3<3

                              The exhaustion is strong with this one

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